Rare & Worthy- Allison's Fight

Allison is a hardworking, kind, joyful, and beautiful 15 year old kid from Danville, Indiana. But behind that contagious smile is girl who has been in battle for her health.

Allison has postural orthostatic tachycardia syndrome, hypermobility spectrum disorder, gastroparesis and four vascular compressions. These conditions have caused her stomach to become partially paralyzed and to experience extreme nerve pain. She now uses a feeding tube to try to get the nutrients she needs and occasionally must use a wheel chair.

The conditions Allison faces are rare and there are few specialists who are truly trained in this kind of care. Because of this Allison needs to go to Germany.

She will need testing in Leipzig and then open surgery in Duesseldorf. Allison will need a long surgery and will be cut down her entire abdomen. She will spend weeks in the hospital and additional weeks of care at separate lodging so she can be monitored before she is strong enough for the journey home.

This is an expensive but necessary journey for Allison and we are asking everyone for their help!